Traditional registry platforms charge per participant, per site, or per data point—costs that compound over years of follow-up. As your registry succeeds and grows, your infrastructure costs become prohibitive.
Scale Patient Registries Without Scaling Costs
Launch and sustain patient registries that grow from dozens to thousands of participants across countries—with infrastructure designed for long-term viability, not just short-term studies.
Why Most Registries Struggle to Scale
Patient registries generate invaluable longitudinal data. Yet traditional infrastructure makes them expensive to launch, difficult to sustain, and nearly impossible to scale affordably.
Coordinating data collection across diverse healthcare settings, from academic centers to community clinics across multiple countries, requires significant administrative overhead and constant manual coordination.
Long-term registries depend on continuous patient participation. Traditional systems require site staff to manually coordinate every follow-up, driving dropout rates and straining limited resources.
By the time traditional registry systems are configured and sites are activated, funding cycles have passed and patient interest has waned. Momentum matters in registry recruitment.
Infrastructure Built for Registry Scale and Longevity
Carelane provides the foundation for sustainable, multi-year registries that can grow from initial pilots to international programs without infrastructure limitations.
Patient Self-Registration
Enable patients to enroll themselves and contribute data directly through intuitive interfaces. Reduce site burden by 50-85% while improving data timeliness and completeness. Participants can complete assessments from home, maintaining engagement even when clinic visits aren't required.
Long-Term Follow-Up
Maintain registry engagement over years, not just months. Flexible data collection, and integrated tools reduce manual coordination effort by 70-95%. Allowing your team to focus attention where it matters most.
Rapid Multi-Site Activation
Launch registries in weeks, not months. Our customers activate up to 60 sites in a single week across multiple countries. The site self-registration workflows and automated capability assessment reduce site onboarding time by 60-90%, enabling you to build momentum during critical launch windows.
Cost Structure That Scales
Transparent, sustainable pricing allows registries to grow without financial constraints. Whether you're managing 100 participants or 10,000, your infrastructure costs remain predictable and proportional, not exponential.
Proven at Scale Across Disease Areas
Patient registries worldwide are using Carelane to collect high-quality longitudinal data while maintaining operational and financial sustainability.
1,000+
Participants
Registries successfully managing over 1,000 participants with sustained engagement and data quality
50
Countries
Global registry programs collecting standardized data across diverse healthcare systems and regulatory environments
Launch
in Weeks
Complete registry deployment from protocol finalization to first participant enrollment
170+
Sites
Active sites already using Carelane for registry operations, from academic medical centers to care providers
85%+
Task Automation
Near-complete automation of routine operations including adherence monitoring, data reconciliation, and protocol compliance tracking
Real-World Application
Multi-Country Disease Registry
A rare disease registry deployed across 50 countries and 170+ sites, managing over 1,000 participants with:
- 60-90% reduction in site activation time
- 50-85% decrease in site data entry burden
The Strategic Value of Scalable Registries
Patient registries are increasingly recognized as essential infrastructure for understanding disease natural history, evaluating interventions, and supporting regulatory decisions—when data quality and scale meet modern standards.
Registries as Research Infrastructure
Regulatory bodies and payers increasingly look to registry data for real-world evidence. Well-designed registries can support drug approvals, coverage decisions, and clinical guideline development, but only if they achieve sufficient scale and data quality.
Long-Term Sustainability Requirements
Unlike fixed-duration trials, registries must remain viable for 5, 10, or 20+ years. Infrastructure economics must support sustained operations without requiring continuous fundraising solely to maintain systems.
Patient-Centered Data Collection
Modern participants expect to contribute data on their terms, through mobile devices, between clinic visits, and with minimal burden. Registries that don't accommodate patient preferences face declining enrollment and retention.
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